Thank you both for your responses. Am I just to assume though that radiation caused damage to my muscles or should I get a different test than the ct scan. It seems though that I may have a couple issues going on, the neck shoulder arm issue as well as the ear throat jaw issue. Jim, I hope you get relief from pt. I'm thinking of making appointment myself. Gary, I think I need to start lobbying for a lifetime prescription. I feel it's like pulling teeth in order to get a 30 day supply of xanax, 25 mg to boot. Some days I need a little help, because with all this pain, my mind goes to recurrence, even with a clear ct. Is it possible that the ct missed something that would cause this sort of discomfort?? The ear pain and sinus pressure is really weighing heavy. My ent looked in my ears and down my throat so far, I thought the mirror would come out the other side. I think I'll start with my medical oncologist for answers and referrals unless anyone suggests otherwise. Thanks again guys.

Kelley


SCC tonsil(left) with contralateral mets. Modified right neck disection August, 2002. 33 rads(62 gy)both sides of neck and 3 cycles cisplatin completed October 25, 2002. 34 yo at time of diagnosis