Hi Jim,
I'm sorry you are having such a tough go, especially 10 years out. I thought it would be a happy day for me reaching my 5 year anniversary. I cried when I got the "negative" result, saying out loud that this was the first day of the rest of my life. That feeling unfortunately lasted about 2 weeks. Now I'm back to having negative thoughts about recurrence, even in my dreams (or nightmares). I always thought I was a strong person. I have had difficulty adjusting. I wonder if you or anybody has had difficulty with tmj after treatment? Would a ct scan show cancer in the jaw and/or sinuses or are xrays better for that. I have an apptmt with a periodontist for some dental issues and will consult with him re tmj. What about necrosis? I know I'm all over the map but the discomfort is wreaking havoc on my mental state. Please help. And good luck with physical therapy Jim.

Kelley


SCC tonsil(left) with contralateral mets. Modified right neck disection August, 2002. 33 rads(62 gy)both sides of neck and 3 cycles cisplatin completed October 25, 2002. 34 yo at time of diagnosis