It is definitely a struggle! I had increased mouth pain at 6 weeks, and found I had thrush. It just adds more pain to the mixture. I took meds to treat this, but still have pain in my throat.

I see a nutritionist to help devise some things that I can tolerate eating, as it is important to regain swallowing capability. I too have the peg tube so that I can get enough nutrition. I feel like an infant coming off the bottle! The struggle goes on, and it is a long process.