So hee I am, two years out from the last time I had any known oral cancer (that is 2 years out from my surgery date, I did have rad and chemo after that despite having clean margins and nodes and that two year anniversary won
t be until the beginning of June. Two weeks ago I had a PET scan as part of normal follow-up (ordered by my ENT) and apparently it showed some "changes in the upper neck" from the one I had about 10 months ago. My ENT's nurse called and said he wants a chest CT and a neck MRI then when he looks over those I will hear more.

I'm trying not to panic. I have not asked to see a copy of the PET report because I figure it will just scare me more. I'm trying to remember that PETs are oversenstive and that about 4 weeks before I had the PET scan was when I had the surgery to remove the stent from my espohagus and maybe that caused the difference. Fortunately, I have an insanely busy work schedule for the next couple of weeks to distract me from this but I'm still so worried. I was finally feeling hopeful about eating well enough to get off the g-tube and looking forward to elebrating my 2 year anniversary. I don't know if I could handle learning that I'd had a recurrence.

Nelie