Jim, if I can remember I think I started getting the spasms at about 3 yrs post tx. I did not have ND. I have had the spasms ever since and you are right they are very painful and embarassing if your talking with someone.
Also for the past week I have been getting similar spasms at my skull base behind my ears. The pain has knocked me off my feet it was so intense. I was wondering if my blocked sinuses could have this effect. Has anyone else had these spasms from neck muscle leading up to behind the ear.
Mark D.