Nelie,
Thanks for your response. It does make me feel better to know that somebody else has had these symptoms as well.
I am still very worried anyhow. It's been about 12 weeks since IMRT ended and things just don't seem to be getting better. Her pain is somewhat better but she is on Oxycontin, Percocet and neurontin, and she takes advil in between sometimes.

Her biggest problem is she feels like her tongue is swollen and she is even having trouble swallowing some of her pills at times. She said when she wakes up in the am she can't eat or drink anything for a few hours because if she touches her tongue to take her pills then the pain starts. She said she feels like the back of her tongue has some sores on it.
Her speech is so hard to understand. It's almost like she doesn't have control of her tongue. She said she wakes up in the morning and she has to push her tongue in behind her teeth on the bottom.
It's almost like she has alot of nerve damage.


Did you experience any of these symptoms???
Or has anyone else had these problems???

She has an appointment with her ENT this Tues.
So hopefully we will find out more.
I just feel so helpless. I am concerned about her getting enough nutrition.
She forces herself to eat. She says she has no appetite.

Michelle