Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | You know, I just looked at that list of prohibited items and it's clear they've thought about very specific needs for people with disabilities like diabetes or being wheelchair bound but not at all for people with dysphagia and xerostomia. Right now, if I was on a long plane flight, I couldn't really eat much while I was in the air--because I'm very limited in what I can swallow and it needs to be liquid. And I couldn't take on board biotene mouthwash although maybe I could take the biotene oral balance liquid (which comes in a 1.5 oz bottle), as long as I had a doctor's note and as long as I had a screener who would beleive it was an essential liquid med even though it isn't mentioned under "including" (but that alone would not get me through a plane flight easily). Brian, Is it possible we could get OCF to contact the TSA about these two things (xerostomia and dysphagia) and how people who suffer from them are affected?
I mean, for screeners running across our needs will be much more rare than the diabetics and wheelchair-bound but that seems like it's even more of an argument for them to know what the issues are and to have a specific list of things that should be allowed (like liquid food if one is dysphagic).
I am truly worrying that these new regs will restrict me from travelling where and when I want (and for me that restricts me on issues related to my job as well) and I'm not happy about it!
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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