Patient Advocate (old timer, 2000 posts) Joined: Nov 2002 Posts: 3,552 | The numbers I have read are more like 10%. BUT, some people get ORN who HAVE had their teeth pulled. I essentially agree with the other posters - if your teeth are in good condition - not perfect, but well maintained and you are willing to step up your dental hygiene to unprecedented levels, then by all means challenge them on the removal of your teeth. I kept my teeth, have them cleaned 4 times a year, floss nightly, had dental trays made and do in- home flouride treatments with presciption foam. I have minor repairs made sooner rather than later. You can never slack off on this - ORN is a lifetime risk. What this meant in reality was dragging my sick, weak ass into the bathroom every night for thorough cleaning and flouride treatments. It wasn't easy and there has to be a major committment to this otherwise it might make more sense to get the teeth pulled.
Unfortunately it is typical. In my opinion it is barbaric. I went AMA to keep mine. The recommendation to pull mine actually came from a dental oncologist at UCSFCCC.
Gary Allsebrook *********************************** Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy) ________________________________________________________ "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
|