Re the Nystatin -- the instructions with the solution Barry got at the Johns Hopkins pharmacy was to swish and swallow -- I guess they know what they're talking about (one would hope, anyway!).

Though Barry never used his PEG, he did have one and he used tape and a gauze pad to keep it folded up and covered as we had this horror of one of our dogs (who are just the right height) jumping up on him, catching it with their paws and and pulling it out . Of course that never happened but it did just "fall out" one day in the last week of treatment. (The little balloon deflated, a bad batch of tubes...)

The MO nurse gave us some pads, which looked like alcohol swabs (come in a little packet) but which are made by Smith & Nephew and are used by people who have ostomy apparatuses. You swab the area where the tape is to go and it helps it stick but also -- more importantly -- allows it to be removed with far less irritation. I also changed the area to be taped every day or so, and the gauze pad every day.

Gail


CG to husband Barry, dx. 7/21/05, age 66, SCC rgt. tonsil, BOT, 2 nodes (stg. IV), HPV+, tonsillectomy, 7x carboplatin, 35x tomoTherapy IMRT w/ Ethyol @ Johns Hopkins, thru treatment 9/28/05, HPV vaccine trial 12/06-present. Looking good!