"Above & Beyond" Member (300+ posts) Joined: Mar 2004 Posts: 417 | I am in the same boat. My PEG was replaced with a G-tube, which is basically like a foley catheter, a tube within a tube. It has an inflatable balloon on the end that is in your stomach, this little bulb/balloon holds approximately 17cc of liquid like water or saline solution. I dislike the G-tube as much as you. With my old PEG, installed surgically, I had a clamp on the tube between my stomach and the atmosphere. With the replacement G-tube, no clamp. It sucks, I spill stuff all the time. I keep my G-tube in a vertical position with (believe it or not) with a small velcro strip, looped around a shirt button. If I don't keep it vertical, it leaks around the CHEAP little closure thingy..... The plus side to this is the G-Tube is cheap ($45.00) you can purchase one on the web and replace it yourself or have a nurse or doctor friend. Very easy to replace.....
Stage 3, T3,N1,M0,SCC, Base of Tongue. No Surgery, Radiationx39, Chemo, Taxol & Carboplatin Weekly 8 Treatments 2004. Age 60. Recurrence 2/06, SCC, Chest & Neck (Sub clavean), Remission 8/06. Recurrence SCC 12/10/06 Chest.
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