I am new to this forum but I did go through the topics with PEG in their titles to see if this has already been covered and I did not find it. I had my PEG inserted in Sept. 2004 before the start of my throat cancer treatment. Neither my wife nor I were given any instructions on the care and use of the PEG. A chemotherapy nurse provided a little instruction, but mostly I learned on my own. But since I had no instructions on proper care, the tube became encrusted with deposits - no one had told us about flushing the line. I asked about replacing it and they said the tube should last about a year. A little after a year of ue had passed, I was feedinf myself at the hospital one day and the tube sprung a leak. It was near the connection end so I was able to use a clamp I had installed and went up to GI for them to repair it. They replaced the tube with a different style and they left off my clamp (and the new style does not have a removable connection piece like the old one so I have no way of putting it back on unless they replace the tube). The new tube is firmer than the old tube so shutting it off by finger pressure does not work. Since the tube is shorter than my old tube, it can frequently spew out material when I open it. If anyone knows a good clamp I can use I would appreciate it.
But the clamp is not my real question. Since the new install I have a frequent problem that I never had with the old install. Every now and then the tube appears to do a flip-flop! This can be very disconcerting. Sometimes I don't see it happen for some time and at other times it will happen several times in a short period. I stopped back at GI one day to ask about it and they said to just adjust the length and tighten the flange. This does not seem to help much as the issue will come back again. Has anyone else had this problem? And if so, do you know a solution?
Thanks!