Jen,
I know that wonderful feeling when the scan comes back with 'nothing lit up'. I requested a PET scan before my last surgery. I didn't want to go through with that unless I knew the cancer wasn't rampant throughout my body. Insurance didn't want to pay, but finally a letter of medical necessity did the trick.

I am also going to request a CT/PET next year to get my lung doctor 'off my back'. My CT's keep showing 'stuff' that is moving around in my lungs and doesn't look like cancer. So he keeps ordering another CT. This year, I have had 4 CTs of the lung, one of the abdomen (pancreas), a barium swallow, a bronchoscopy and an endoscopy, the later because of spot on pancreas(been there since 2003, unchanged) that showed on a lung CT. All of this and I have no symptoms of anything. He just wants to keep checking, but he still hasn't called me back on the infection found on bronchospy done in October.

They keep telling me all this radiation from the tests is nothing. I say no more than 1 a year from now on and less if possible. My surgeon does not think the spot on the pancreas should even be bothered with and since I have had no lung problems since May of 2004, we can ignore that incident also. I agree but this other doctor really gets nasty when you counter his opinion. For now, I'm taking control.

Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I