Patient Advocate (1000+ posts) Joined: Mar 2003 Posts: 1,384 Likes: 1 | Darrell, I'll go one further and tell you that my ENT refuses to order a PET scan for me. This has been a source of conflict for me for two years now. The last time I asked, he had just completed a seminar where the weakness of PET type scans were discussed.
I am on one hand dissapointed that I am not getting the "Best" follow-up, and on the other hand I am happy that I am not forced to worry about a false (or inconclusive) reading. (which you know is no fun)
I wish you well.
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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