OK, I almost let myself decide this wasn't even worht asking about but I am Sooo good at minimizing my symptoms sometimes, and its what got me in trouble in the first palce, so here's my question.
background: 3 and 1/2 months out of rad, I am still having lots of mouth and throat pain, much of it in the mouth appears to be from spots on my tongue that rub against my teeth, especially when I swallow liquids or talk and seems to be getting better. But I still have at least one inflamed and whitish looking sore on one cheek that's from the original mucosoit and occassionally hurts. And I have this one VERY sore spot in my throat that seems ot be just as sore as ever. When my ENT has looked there he says it looks like my "throat is peeling" there. Recently I had a PET and MRI and heard rom my ENT that everyhting looked OK in terms of no signs of recurrence. He did say there would be hot spots on the PET from the ehaling parts of my mouth/throat, howver, so I don't knwo if maybe for those spots he really can't tell what's going yet,
Because of these spots, I still am having problems eating or even dirnking smoothies orally and am still on tube feeding which I am SO ready to end (but I'm also so tired of trying to eat something and being in pain and getting more discouraged so I go days wihtout even tryng to eat, which also probably isn't good).
Also, I have problems still every now and then with thick gobs of phlegm getting aucght in my throat, right around where it triggers my gag reflex making get these long wretching dry heaves. Lots of times there days I can hack up the phlegm before it does that though if I feel it gyrgling around in my throat (my husband says I gurgel constatnly as I sleep so this gives oyu an idea that it's not just some oittle thing). Usually the phlegm just looks lik th ordinary stuff you mht cough up if you had a cold--its like that part of my throay always has a cold. But yesterday I got the dry heaves, and for a whiole notoing came up, then a couple of smallish bloody pieces of someting--almost like something had been scabbing over then I coughed it up. I didn't keep coughing up more of it, but this is the first time I'vce coughed up bloosy stuff since duringa nd right afetr rad. when I had all sorts of really raw spots. Should I be cincerned about this suddenly happening thee months later? I have a month until my next appt. with the ENT, should I pester him to see me (yet again) beofre my appointment?