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#56845 08-31-2005 08:40 AM | Joined: Feb 2005 Posts: 2,019 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts) Joined: Feb 2005 Posts: 2,019 | Lee, I am almost three months out of radiation and I still don't have 80% if my old energy back. I thought I would but my recovery seems to be much slower than I'd hoped. I'd say I'm about at 50% and some days less. Some days I am just flat-out exhausted all day like I just finished rad.
The mouth gunk got better for me around..week 7? week 8? It took longer than I thought it would. It was gradual and I still carry PUFFs everywhere ebcause I have spit attacks where I have to just get a bunch of gunk out. Also I have either had allergies or a little cold lately and all that nose gink seems to drain to halfway down my throat now and then it just sits there until I spit it out.
As for trismus (not being able to open your mouth), I just a couple of weeks ago noticed I was getting that in some much worse and more noticable ways than before (can't even fit two fingers in the gap between my upper and lower teeth in the am--let alone 3). I am in the proecss of ordering a therabyte--let me know how yours works because I certainly HOPE it will do soemthing to help change that around for me.
Nelie
SCC(T2N0M0) part.glossectomy & neck dissect 2/9/05 & 2/25/05.33 IMRT(66 Gy),2 Cisplatin ended 06/03/05.Stage I breast cancer treated 2/05-11/05.Surgery to remove esophageal stricture 07/06, still having dilatations to keep esophagus open.Dysphagia. "When you're going through hell, keep going"
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