 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | Hi Vicki,
I have wondered over the past weeks how you were doing.
Is it your jaw that is giving you trouble or the fact that you are missing most of your tongue? I had jaw removal but no tongue surgery. I also have a part of my tongue that rubs on my back tooth and by night it hurts to talk it's so darn sore. But, I swallow quite well although I do cough way more then the "normal" person would during the course of a meal. I don't have issues with what I drink coming out of my nose. I do always feel a scratchy, irritated feeling in the back of my throat when I am eating and my ears itch ALOT.
I wish I could offer more to help you. I'm glad the trach finally healed for you.
I hope you get some good answers to your questions. Keep your chin up, you have been through much more then most of us on here.
Take care,
Minnie
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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