Doreen, Is he currently in radiation treatment? If so the radiation will affect the swallowing process quite a bit. Look for improvement after several weeks and even months after the radiation ends. It is a slow process. I am sorry this has disrupted your lives at such a young (my) age. There are folks here whom have had the total glossectomy and perhaps they can share some of their experiences.

I am amazed that he had a "massive" tumor with no nodes involved. Perhaps you could tell more about his experience? How it was discovered etc.

Take care

Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.