 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Shelley,
Even a year and some (2-3) months after treatment, I still struggle when the weather gets cold and dry here in Texas. We have been going from 80 to 20 in a couple of days for a while and I really notice the colder mornings. It hurts and I seem to have to learn how to swallow all over again. For many weeks after treatment, I had to travel on an airplane (only about 45 mintues) and I noticed it, too. We flew on a 13 hour trip to Japan and I thought it was borderline unbearable. Lots of water seems to be the best answer. Even on extended trips in the car (5+ hours) with the air conditioner on makes the throat hurt and I have difficulty swallowing.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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