Debbie, I had swelling for several months after radiation was over. It turned out to be swollen tissue. If Dan had his lymph nodes removed then it is very normal for the side of the neck to swell up, as the fluid that is usually dealt with by those lymph nodes has nowhere else to go. It takes a while for the body to learn how to 'deal' with that fluid. It does improve gradually. I have recently experienced jaw pain on the operated side, and it turned out to be apical abscesses which were infected. I had the pain for several weeks before the abscesses became apparent. I am told that they occured because I have several dead teeth resulting from the radiation to that area of the jaw.
You and your husband will worry about every twinge or anything abnormal with his mouth or face. It is normal!! I think that you just learn to live with it. Just make sure that you get everything checked out. That is all you can do.......and try to think positive.
Love Debbie xxxx
Debbie T, from Southampton, UK. Cancer of tongue - stage 2(diagnosed 04/03). 45% tongue removed and reconstructed from left forearm, plus radical neck dissection (06/03). All followed by 33 sessions of radiotherapy (ended 09/03). Diagnosed at 43. Non -smoker, social drinker, don't know why!
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