Eric,

Been meaning to post to you for some time, but haven't had the time. I'm sorry your neck dissection was so painful. I didn't have that experience. As for problems with the shoulder, You probably went back to work too soon. I did the same thing after my first neck dissection and I didn't have any muscle loss. I wound up with severe pain in the back because I was sitting in strnage positions at my desk trying to compensate for the arm.

Here are some things to try until you get to PT. Make sure your desk chair has arms on it so your arm is supported. Support your arm with the other hand under the elbow while walking any distance or if it is hurting. Do not lift anything heavier than a lb. I also supported my arm at all times while sitting or riding in the car. I used a stuffed bear who has been with me for through all my cancer treatments, but a pillow under the arm is just an effective. PT is what you need as soon as possible. The second time around, I went back to work 8 weeks after surgery rather than 8 days, got PT right away, followed my above rules and had no problems at all. Hope that helps.

Take care,
Eileen


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Aug 1997 unknown primary, Stage III
mets to 1 lymph node in neck; rt ND, 36 XRT rad
Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND
June 5, 2010 dx early stage breast cancer
June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I