 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Lynn,
I lost about 70 lbs from Aug to Jan and even eatin garound 2000 calories per day didn't help. I later started eating high fat, high calorie everything including Boost Plus with extra fat and protein. I read that thrush can prevent the body from gaining weight so I have been attacking that. I started eating many meals a day but smaller amounts and I gained back about 18 lbs in a month. It is hovering around there but I feel so much energy compared to even a month ago. My hemoglobin has been low since October but they are not giving me anything for it. I started riding the bike and excercising and the energy is rebuilding rapidly.
Good luck tomorrow. I'll be thinking of you and praying for you and your family!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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