OP Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello to all my friends at OCF.
I am finding this post treatment time to be the most diffucult and challenging of the whole process. I am 6 months post surgery and almost 10 weeks post IMRT radiation. I still have my PEG tube in and find that even though I can eat I have no desire to eat orally. It takes me so long to eat I end up warming up the food in the microwave at least two or three times before I am finished. It's so much easier to feed myself Jevity through the tube and thats what I find myself doing. Very unlike me to take the easy way out. I know I am depressed even though I am on anti-depressents. I am having a combo PET\CAT scan on Feb 11th and I am having real bad vibes about what this scan will show. My neck has been real tender on the right side and feels a little swollen to me. I will see my ENT and Rad guy on Feb 18th. I am not looking forward to getting the results. I also have a mild case of thrush. My primary care doc gave me a script for liquid Difulcan to take for 5 days. Is it thrush if your saliva is real tacky and white? My tongue is white but I can brush it off with my toothbrush. The back of my throat is white on the side of the surgery.
I am still using Biotene toothpaste and mouthwash everyday. I had my teeth cleaned last week and had no cavities. The dentist said everything looked good. I took your advice Brian and am scheduled to have my teeth cleaned every three months. Well this is all for now, Thanks for letting me vent, I know I still have a way to go and I will try my best to get through this depressing time. Living in Wisconsin in the winter doesn't help as there is not much to do for a couple of months yet except shovel snow. Your Friend, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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