Diana,
I feel so bad for you. I can relate. I went through a very similar experience this past year with my mom. Really bad reaction to Morophine leading to late night visits to the ER, pneumonia, fever, heart rate all over the place, hallucinations, etc. I was freaking out. Hang in there. I know it's not comforting, but you just have to keep trying different drugs to see which ones work and which to avoid. Once we found a drug that agreed with her, she started to rely on it a little too much. The docs and I slowly got her off of that med, but it's not a cold turkey process. A lot of people in the forum are all too familiar with your frustration. Don't apologize for venting, we've all done it and this is a great place to do it. My mom's docs told me they hadn't seen other patients react the way she did, and they were scrambling to find solutions. That's a real scary place to be. Finally I got lucky and found a doctor who took a good look at the cocktail of drugs she was getting. The doc slowly started adjusting dosages, eliminating some and replacing others. It felt like it took forever to figure out, and that's where the frustration really kicked in. Seeing a loved one in agony for even five minutes feels like eternity. Days and weeks of it can make one nuts. Please hang in there. You will get through this.


Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.