OP Patient Advocate (1000+ posts) Joined: Aug 2003 Posts: 1,627 | Thanks Brian, I have a check up with my otolaryncologist Dec. 4th and I'll see what he has to say. I have learned that the mucositis sores can re-visit after radiation, but why is it so hard to get one to heal? Are there any secrets? I had the sore on my tongue biopsied so we know it's not cancer, but I sure wish it would go away. By the end of the day it's so sore that I don't talk as much as usual. It's gotten smaller, but is still there. You are certainly right about so many unusual things going on in the mouth post radiation treatment. I look every day at parts of my mouth that I never cared about for the past 42 years. I've never given my mouth so much attention! Thank you for the advice and have a great turkey day.
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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