OP Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Well,
Thank you all for your encouragement, your kindness, your thoughts and prayers. We went for the second opinion and my otolaryngologist thought there was nothing to worry about although he said just because they move around is not a postive sign of no cancer. He then proceeded to tell me I can still see him every 8 weeks if I was willing to drive a little farther to Nashville. He assured me that should I have a recurrence, he would gladly do any surgery or further treatment. He then told me I was "well fed" which was much more diplomatic than the "huge" last time.
Susan and I switched chairs and then he methodically checked her out. He looked down her throat with a mirror and felt it was something that would be removed and never cause future problems but cautioned us to not do a frozen path as the real results come from a complete path.
Today we spent a good portion of the day at the hospital and after about an hour or so, the doctor came out and said he did not feel there was anything to be concerned about and even stopped short of any lymph node removal. He said he removed everything and did not find anything other than the one spot on the base of the tongue. We should get the path results by Wednesday. I will certainly update y'all then.
Thanks so much for letting me lean on you. You are the greatest folks I have ever known and I am truly honored to know each and every one of you.
Your friend,
Ed
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
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