Hi Miriam,
My mom was given tussionex, it helped with her mucous.
I too was annoyed with anyone not involved with my mothers care. My best friend would phone me and tell me about how she had to scrub stains out of her kids clothes. On a 'normal' day that would irritate me, can't tell you what it did to me through all of this.
My mom went up and down with eating during her tx's. She only got the ng tube on 9/17 and it was removed last week, it was fractured. They didn't replace it, they trusted us to be able to get her calories in....why do they put so much trust in me???
All through mom's tx's she had diarrhea. Doc's didn't seem to concerned.
We too used the aquaphor. The head and shoulders nearly made my mom come out of her skin, we found that Dombrero soaks helped most, that and time of course. The soaks are over the counter.
I would ask for the tussionex, that releived mom of choking within a day!
Donna