 Supporting Member (50+ posts)
Joined: Oct 2007 Posts: 83 | Valerie,
Did the install a PEG tube in your husbands stomach?? I've had one in for three weeks now and I don't "taste" antything. Like your husband I got the gag reflex and the everything is salt taste. I'm doing 2500 cals a day now and feel good except for my mouth.
I've done 28 general TOMO rides as of today and have 10 "focused trips startin on Monday.
The PEG tube was a god send for me.
Best wishes,
Gary
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
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