Supporting Member (50+ posts) Joined: Oct 2007 Posts: 83 | My mouth got/is so bad that I went to the PEG feeding tube and stopped trying to eat anything, because it hurt and I gagged on it. It may not be what you want....but...you need good nutrition to help fight and now I can. I'm doing 2500 cal's a day and feel really good. Except for my tongue and mouth and oh yeah the Erbetux make me look like I just escaped a hanging....but its all good...and better than the alternatives. Best wishs, Gary
Stage 4b BOT and node on right of throat. did 38 trips of TOMO PEG tube,Cysplatin,Taxotere & 5fu 1st 4th and 7th week, changed to Erbitux for the last 4 weeks. 1st PETS since end of TX..CLEAR 6mos out and 2 nodes are hot. Bilateral neck dissection on 10/31/08. Clear Scan 3/31/09 & 8/02/2010
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