Senior Member (100+ posts) Joined: Mar 2006 Posts: 114 | Having read through what seems like thousands of posts on this same issue, it seems the 'average' is about the 2-3 week mark of radiation, where people start to notice the discomfort of mouth sores, etc. That's when it hit me. In fact I cruised through the first two weeks thinking...hmm....maybe it's not going to affect me like the others? And then it did...the mouth sores started to develop, and within about a week I found myself eating mostly through my PEG tube.
As others have said, everybody is different and it also really depends on the radiation mapping and what tissues are being affected by it.
Something I always tell folks as a heads-up, most people who do experience the painful oral side effects of radiation find that the worst of hit doesn't hit until a few weeks or more after treatment ends. The radiation seems to keep on working even though the treatments have ended. I was warned about it and was glad I knew, because that was certainly my experience as well.
I hope you can be among the group of folks for whom the side effects are not severe.
Best regards, Steve J.
Age 41 - Stage 2 SCC tongue Dx 2/06. Cisplatin x3, IMRT x35. Mets to neck node discovered 7/07. RND 40 nodes removed, margins not clear. Cisplatin, Taxotere, 5-FU Fall 07, then IMXT/Erbitux for 7 wks. Inoperable mets to both lungs and pleura Dx Oct'08. 4 cycles Carboplatin, Erbitux, 5-FU so far.
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