Firstly, thank you to everybody who has responded to me as everythng really looks like great advice. I've got my mom combing through this thread as well as others to gather all the things I will need throughout my radiation process.

JAM, you will laugh but we actually have a secret room in our house that our kids don't kow about and sounds like i will be speding alot of time there. never planned on keepin it a secret for this reason.

One more question I have for everyone is the plan of radiation they gave me. I ha a .5cm tumor on back left side of my tongue which was removed with thin deep margin and in situ carcinoma on medial margin. Sloan is recommending I get high dose IMRT on left side of tongue and lower dose on right side. They dont plan to radiate my neck area on either side as they think it is very unlikely cancer spread to nodes. Do people agree with this approach or should I insist on being aggressiv and radiate the neck. What are the additional side effects of moving down to the neck. Isn't it good to save the ability to radiate my nodes in the future god forbid i need to?