Platinum Member (300+ posts) Joined: Nov 2005 Posts: 306 | Warren, You might consider chatting with your doc about the drug Ativan. Some folks, like me, got spooked with that mask clamped to the table over my head. The Ativan can really help. Take it about a half hour before you go in - but don't drive if you are taking it.
My IMRT left me with substantial burns both inside and out. The kids will notice the swelling and peeling skin and the redness, but will be reassured if you don't seem worried about it. Kids are more likely to trust their instincts than their eyes. If they think you are upset about it, they will be too. If you seem to be yourself and can smile and laugh, they won't let your appearance dictate their reaction. Remember that each of us experiences radiation side effects differently - your experience will not be just like mine.
Radiation has a cumulative effect. The symptoms are slow to start and (for me at least) continue to accumulate even after you are through with all the treatments. My worst days were in the weeks following the end of treatment.
Keep your medicine chest well stocked with the recommended skin ointments, mouth rinses and pain meds. I appreciated having them for several weeks after I quit going to the RadOnc.
Be ready to be much more tired than usual. Radiation really taxes all your physical and emotional resources - leaving you feeling flat and tired. Drink more water. Then drink some more. Hydration cuts side effects dramatically. Fluids and calories - all you can get. You can do it. Be strong. Tom
SCC BOT, mets to neck, T4. From 3/03: 10wks daily multi-drug chemo, Then daily chemo with twice daily IMRT for 12 weeks - week on, week off. No surgery. New lung primary 12/07. Searching out tx options.
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