Max,
If you don't mind me asking where in Indiana are you? My father is currently in his fourth week of radiation and it is getting tough. He is also located in Indiana, thought possibly we might be close to each other. He is experiencing all of the things you and everyone else has talked about. My mother and I are trying anything we can that he may be able to get down. You are not alone... we are all here with you going through this together. What a horrible disease. My advice to you and your wife is keep visiting the website and talking to these folks - they have helped us so far... beyond belief! My father refuses the PEG so we are doing the best we can.


Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014