Gary,
Have they mentioned Amifostine shots to you for protecting the saliva glands long term as well as helping with the dry mouth. I know several hear have had them - but don't know if that could be part of your regimen. You take them every day prior to radiation. They however can also cause nausea. You sound like a real trooper - so hang in there. Treatments don't last forever.


Caregiver to Father:Stage III unknown primary; modified left side neck dissection 2/2006; 8 wk trmts of Erbitux 3/2006 with-37 radition treatments; 11.2010; biopsy of base of tongue results questionable. 9.2013 tumor on left side of tongue; squamous cell cancer. 10.2.2013 Hemiglossectomy(1/2 tongue removed) with reconstruct tongue using left thigh tissue;surgery included IORT.
25 additional IMRT radiation trtmts & 5 wks/chemo. Carbo & Taxol combo.NPO;100% PEG depend;aspiration pneumonia 3/2014