Thank you folks so much for taking the time to write. It really helps to calm me down a bit just knowing that it really DOES get better, and the docs are NOT part of an underworld scheme to grotesquely disfigure America. ;-) I have left a call to have him call me ASAP Mon am, and I really hope and pray that Helen is right, and that my mouth will be able to open a bit more.

Carol, I don't feel like you were making light of the situation.....actually that's what I SHOULD be doing- finding the humor and forgetting the horror.

I'm still concerned that that side of my mouth seems to be so far above the other side-it seems like more than just swelling could account for. Is this common? Will I forever have a postoperative "leer".....?

Also I seem to have hair on part of what I had assumed was lip. Good Lord- it's really a mess- I can't really tell for sure what's supposed to go where!!!!


SCC right tonsil Dx 14 Feb 03
No surg till Apr 03
Lip resection Sep 05 "frankenface"
Recurr Apr 10
2/3 tongue removed Jun 10
SPEECH/SWALLOW/DROOL challenges FUN!
Dec 10 Tumor @ nodes/larynx/cart artery growing
Erbitux Mar 11 Hyoid bone regrows!?
recur Dec 12
begin taxo chemo
10yrs-still kickin!