 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | And to clarify...
My mother had days if not weeks to live and our choice was to cancel the final trip of her life and with the guidance of the Department Head of the OB/GYN Oncology unit of UT Southwestern Medical Center (the next NCCN member) we re-inserted the tube and had our next door neighbor (family physician at a medical system that uses UT Southwestern physicians exclusively) come and review the process and examine her prior to the trip.
In my case, my stoma healed within minutes after removing my Mic Key. I called the doctor after I got my car from the parking garage and asked when it would be okay to eat and he said now so I stopped the next block and had lunch...fried chicken!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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