Gail,

I remember back in October 2000 we were scheduled to go on a trip, perhaps my mother's last one in her life as she was living way beyond all the medical expert's expectations. The night before we were to catch a plane to Miami and then Freeport, her tube came out. It was a GJ tube that had a long extension that went past the jejunum as she had to have special liquid that was in a partially-digested state, to no get to technical.

Anyway, at 8 pm the night before it came out and this was the 3rd one that had come out. The doctor told me to just re-insert it and it would work it's way back down, tape it up and bring her in after we got back. Otherwise, they would have to admit her and cancel the trip. He felt the trip under the circumstances might very well be her last amd she would enjoy it.

On our last night there, she pulled it out in the middle of the night. We still managed to re-insert it, tape it and begin the 14 hour journey home. She did get a fungal infection but otherwise we had a great time.

If Barry is eating well I guess I would trust the medical folks. I didn't use mine a lot anyway since when I was nauseas it didn't matter if it went down the throat or in the tube...the after effect was exacty the same.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023