Gary: She is on her ninth treatment and having some sore mouth issues. She started losing weight right at the start because of some stomach virus. I guess my concern was seeing the huge amounts that some people lose on this forum and she's five feet nine inches and she weighs 115 pounds. I'm already concerned with her weight and couldn't understand why her doctor wasn't. I found it interesting what you said about your doctor not being real pro or con regarding the PEG. But even her RO never mentioned weight loss as a potential side effect. SHE doesn't want to get the thing and I hope she doesn't have to. I was mainly concerned that possibly no one was mentioning all this stuff because of her lack of insurance. She's not getting IMRT but the RO did say he thought the saliva glands on the other side would be spared - perhaps that's due to the type of cancer she has and the area they're hitting. She's on a variation of Medicaid but I mentioned here before you can't get Medicaid in Colorado if you don't have kids. She has none. What she's on is almost like a voluntary organization where doctors and hospitals donate their services to people with no insurance and no money. From what I understand, the hospital won't see a dime for any of the treatments.


Robin