I know this is a tough question but I've had a growing discomfort with the information and recommendations being given my sister. She has no insurance and a local organization (CSICP) is covering her care. Her doctor discouraged her from using Amifostene - saying he didn't think she'd need it. They haven't said one word about a PEG despite the fact she has already lost five pounds and cannot possibly afford to lose a single pound more, and no one has talked to her about medications for mouth sores or skin problems. (Is that something they wait bring up till you have the problem?) I keep reading how many people felt the PEG was necessary and I'm just concerned that they haven't ever even mentioned it. Is it possible the fact there is no real insurance to pay for this stuff is affecting recommendations or is it more likely the doctor just doesn't see the necessity of going there yet? It seems that both the surgeon and the radiation doc downplayed the side effects to virtually nothing which went against a lot of what I've read here. I know everyone is different but I'm just feeling concerned. So far the only side effect she has is a rough feeling mouth (after 9 treatments). Thanks for any thoughts and advice!