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#44700 03-22-2005 12:32 PM | Joined: Feb 2005 Posts: 663 "Above & Beyond" Member (300+ posts) | OP "Above & Beyond" Member (300+ posts) Joined: Feb 2005 Posts: 663 | Well what a day. And I am not even half way through.
It started at 3am when the heavens opened up and dumped the wrath of hell upon us. The power went out, we were awaiting the tornado (thankfully it never came) and my neighbor lost a huge tree that blocked the street this morning so I had to go way around the block to get out of the neighborhood.
The kids and I huddled in the kitchen and listened as the torential rains poured from the skies. One of the dogs was on the porch and in the pitch blackness I opened the door to let the dog in and lightening struck what felt like my neighbors house. The sound was deafening and the light was bright. The kids screamed and the dog freaked and I tried to get the hair on the back of my neck to stand down.
The lights stayed off until morning and the alarm didn't go off so the kids were a half hour late to school. Then it was finally off to battle the Houston traffic into the Med Center to the hospital.
Harry refused to allow the nurse to start the feeding until I got there so it was after 10am when we finally got things rolling. He was in terrible pain and swore that he had asked for meds through the night but the night nurse said that she asked him several times if he wanted it and he said no. Who knows what really went on. Next time I just need to call the nurse myself to make sure that he gets it. Gotta love the morphine!!
For most of the day he slept and I worked on my homework for school. Thankfully I am on spring break this week.
So now you are thinking that the day has passed and we are home resting comfortably... oh contraire!!!
The rad machine has been down all day and I had to leave to go home to take care of the kids. He wants to stay another night in the hospital but they won't let him and he still has to do his rad treatment for today. So I am home with the kids eating mac and cheese waiting for the home health people to deliver supplies and then we all have to pile in the car and head back to the hospital for my training (which has not yet happened) and then we bring Harry home. I imagine it will be sometime after 9pm before we are home.
Then it is baths for the boys and getting them settled for bed, getting Harry settled for the night, then dishes and laundry and maybe by 1 or 2 I can retire to my couch and turn on the music and for a moment shut out the world.
We can only hope. :-)
So I guess in a weird way I have to take things one day at a time because there is so much that happens in just one of our days there is no time to plan for tomorrow. :-)
I think that once this is over I am going to try to get a job as a CEO somewhere. I know that I can multitask and manage very well so maybe I can put these skills to good financial gain.
Cindy
Caregiver to ex-husband Harry. Dx 12/10/04 SCC stg 3, BOT with 2 nodes left side. No surg/chemo x4 /rad.x37(rad comp. 03/29/05)Cisplatin/5FU(comp. 05/07/05)-T1N2M0-(cancer free 06/14/05)-(12/10/06) 2 yr. Survivor!!!
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