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#44410 01-14-2005 07:57 AM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Brenda,
I am glad things are going better for you and David. I remember when our first son was born and on the first doctor visit we were asked how the baby was eating. As soon as I mentioned we woke him up to eat in the middle of the night the doctor screamed at me, "...who would wake a sleeping baby? That's when YOU are supposed to sleep!"
I hope while David is resting, you are, too! Don't hesitate to up the patch if needed. I ended up at 150 and could have gone higher. The key is to minimize the pain and still remain somewhat functional, under the intense circumstances as it is.
May tomorrow be even better than today.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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