Hi All ...
Thank you again for all your input. I'm taking it all to the hospital with me each day ... so far Barbara has not complained about the Nystatin, but I have told her about the other medication, in case we need a change.

She is going into her 4th week of radiation and no sores in the mouth. She has used the New Zealand Manuka Honey 15 mins before radiation and 15 mins after radiation. The hospital gave her a small sample as it is very expensive in the U.S. Hers came from Colorado ...

However, when she told me about the honey, I contacted my dear friend who lives in Aukland, NZ and he said that they could get it for very cheap there, and raw ... the real thing with no additives, etc.

He shipped us over 4 1lb. jars and she says it is much better tasting than the stuff the hospital gave her.

No sores yet ... I'm keeping my fingers crossed. Her neck area is sunburned like you all said. She is just using aloe on this.

Now we are continuing to have a problem with the port for her chemo. Today it is swollen and sore and each time she has the chemo it burns. They did a dye test to check for leakage and there was none, but this is very bothersome to her.

Also, she was eating on her own, chewing and swallowing and the radiation and chemo I think is getting to her now. Both yesterday and today, we had to do the tube feedings because she just wasn't getting in her nourishment. She didnt' want to do it, but I had to make her ...

Also we have added Pedialite to her routine for fluids. She likes this and is doing well with it.

I'm off to pick up meds ... and in rural Vermont that is a 30 minute drive.

I love you all...
Thank you for being there.
Betty