Gita,

Unfortunately that withdrawal part is pretty much on course for what I went through. I rarely left the house during treatment partly because my counts were down and I didn't want to risk infection, partly because I felt so bad and didn't feel like being around other people.

I pushed myself to work too early and that forced me to be around more people but it was really difficult because my work involved being out of town all week long. I spent the weekends trying to recover.

I am a bit out of treatment now but some days I just feel a little overwhelmed by it all, wondering if the new strange things are permanent or just cycling through.

I hope this helps.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023