|   Patient Advocate (old timer, 2000 posts) 
 Joined:  Nov 2002 Posts: 3,552 |  I am a little surprised that she did this without a PEG tube (although I have to admit I did it without a PEG tube).  I couldn't stand either Boost or Ensure (they would make me gag) and used Carnation Instant Breakfast instead.  I was sick quite a bit in the post Tx phase.  I tried decongestants and steroids to cut the mucositis with varying degrees of success.  A mild salt water rinse may help but it could burn if she has blisters in the mouth.  My mucositis went away at about 4 or so weeks.  In early post Tx, progress is measured in 3 week increments.   Gary Allsebrook
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 Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
 Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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 "You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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