 "Above & Beyond" Member (300+ posts)
Joined: Feb 2004 Posts: 372 | Hey Danielle,
My husband had SCC mobile tongue and surgery in July/03. About a month later he had a few "spots" taken from his tongue. Turns out he has a very rare disease called proliverative verrucous leukoplakia (no known cause and no cure), but all spots that show in his mouth will be precancer and must be removed. It might have been what he first had before the sore on his tongue got big (didn't get it checked for a while) and turned into SCC. We were trying to find a study for the PVL disease, but meanwhile Dan got a swollen gland and was diagnosed with neck cancer, had a radical neck dissection and now is heavy in chemo/rad treatments.
If I can be of any further help, just let me know. We are praying for a full recovery and will pray the same for your family!
Debbie
Debbie - Caregiver for husband, Dan, diagnosed with tongue cancer 7/03. Partial gloss., mod. neck dissections, graft. Recurrence neck tumor 12/03. Radical left neck dissection 12/24/03-unable to get all the tumor. 8 weeks chemo/rad beginning 1/12/04.
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