Patient Advocate (1000+ posts) Joined: Jan 2004 Posts: 1,116 | Hi JJ! I want to commend you on your positive message, your spirit is truly inspirational!! I hope the worse is behind you. I had almost 1/2 of my tongue removed and replaced with the muscle in my arm (they call it a flap), it kind of looks like two tongues cuz there is a small split in it in the front. I had speech therapy which really helped. I had two positive lymph nodes removed also and 35 radiation treatments. I thought all along my tumor was stage II, just found out that it actually had been upgraded to stage IV due to the nodes. I am grateful to be alive, it will be two years since my diagnosis on May 10th. Keep Looking Up!!!Your attitude about all this is inspiring!!!God Bless You!!!!Will keep you in my prayers!!!!!!!!!!
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10 ---update passed away 8-27-11---
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