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#42937 02-17-2004 02:46 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hi jj,
Nice to hear you are doing so well. Everyone hear loves good news. Your spirits seem quite high. A symptom that you will do well on your journey. I can't give you any advice on the graph problem. I had a pech muscle used to rebuild my throat. My speech has improved in the 7 months post surgery but will never be like it was, A small price to pay. Your staging must have been uplifting. I was a stage four SSC on the right tonsil and surrounding tissue. I had IMRT radiation 10 weeks after the surgery. Someone from this site told me to measure your progress in weeks & months, NOT days. They were right on. The healing and getting your life back is a slow process that can't be rushed. But believe me IT WILL GET BETTER.
I'm sure someone with similer surgery will answer your post and be able to give you the info you are seeking. In the mean time. Rest and heal. Make sure your getting the correct nutrition and drink allot of water. I kept a diary of my food & liquid intake. I dropped 30 lbs. in 2 weeks and gained it all back in 6 weeks using a feeding tube. I added carnation instant milk to my Jevity for the calories. I also inputted allot of Gatorade and water. A nutritionest should be part of your team. Good luck and keep your head up, Dan
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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