Kim and Donna,
I had problem similar to you, Kim. My computer at home crashed and I haven't been able to come here for 4 days....hard to take!!
Re: the PEG , mine is attached with that weak little white tape that they use at the hospital. I constantly change the tape since it gets weak when I shower. But for the most part the thing stays in place. Regarding the mucous at night: I have found that using my little suction machine next to the bed is an improvement over when I used to go through a box of Kleenex at night.

I did have a barium swallow yesterday...the therapist said that I did really well swallowing and that I should start trying to eat more. Funny how I am so comfortable with the PEG and kind of scared of eating! So yesterday I started with a can of chocolate boost...I took one sip and it kind of burned my tongue and I did not like it. So much for that. I tried pudding last week with similar results and not much better with apple sauce...Perhaps next I'll try oatmeal or scramble a soft egg. This stuff should not be so hard, but darn it, it is! I still have a lot of mucous and that makes it difficult too.
I also saw the dentist yesterday and he thinks that I should starty weaning myself from the Duralgesic 75. I started to go down to 50 and then 25 a couple of weeks back but the radiation oncologist encouraged me to keep a high dose. The thing is that I can nod off into a doze so easily while sitting around and I am pretty sure that it must be caused from the narcotics.
Anyway, my stomach may not be a six pack, but ain't no blob of jello neither!

Thanks for your interest and best luck to anyone,

Danny


Stage IV Base of Tongue SCC
Diagnosed July 1, 2002, chemo and radiation treatments completed beginning of Sept/02.