Big,

Sounds like a CCC is your best option. Just to share my sisters choices and outcome. She discovered her OC on the tongue very early. She was a dental hygienist. Had surgery to remove less than 25 % of her tongue. The cancer returned to glands and nodes in neck, had modified neck surgery, declined the radiation that was recommended. Was a very young 48 yr old with healthy habits, veggan, etc. Always came back strong from the surgeries. It came back again and she had a radical, still declined the radiation. Cancer returned to her carotid artery and surgery was no longer an option. She underwent radiation and chemo, but passed away 5 months later. I don't know if her outcome would have been different if she had undergone the radiation after the 2nd surgery, but just shows you how aggressive this cancer is. She worried about the after effects of the radiation and quality of life issues...she has no life now. I miss her everyday and wish she was here. This took place in a 2 1/2 year span.

You are in my thoughts and I hope you find the treatment, just remember the aggressiveness of OC.

Nancy


Caregiver to sister Connie, dx 2005, scc tongue, 4 surgeries inc. radical left side neck dissection 7/06, 35 IMRT, and 7 cisplatin 2/07, passed away 8-11-07, 51 yrs. young, fought with courage, strength and grace, found peace on her new journey.