"Above & Beyond" Member (500+ posts) Joined: Jul 2007 Posts: 939 | Lois,
Of course we have a different tumor to deal with but Bill's "burns" are/were bilateral especially in the first set of treatments. His redness and now peeling and dark skin go all the way around his neck and up his throat like he sat in the sun with a boat neck shirt on. You probably need to ask the RO, but I assumed they are hitting everything that could have a recurrance with the IMRT part saving parotids and other vital structures. Bills' last 10 treatments have been "boosts" where they "cone" down to the tumor area. Oddly enough, his pain is way less...we are completely off pain meds now. Go figure. Your best bet is to pin the doc...good luck..they don't think we women are capable of understanding technical stuff...so just hit them with questions the normal population wouldn't ask (we are empowered by the information we receive from this board and our internet searches.) It takes them aback but they finally start answering questions.
I am a little aggravated with our RO...haven't seen him since Bill's hospitalization. You better bet that if we aren't guided to a consult after his last treatment tomorrow, I will throw one of my hissies....sometimes you have to be a squeaky wheel and I know that you can do that very well Lois! Deb
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997. DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0 TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5. TREATMENT END: 10/1/07 PEG OUT: 1/08 PORT OUT: 4/09 FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
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