David ended up in Hospital last week Tuesday - Friday. He became disoriented (extremely) and was dehydrated. The medications then they had him on just made everything worse. His Body trying to fight cancer, Fight the Radiation after effects, and mentally still now competly accepting of the Peg tube, and not wanting to take pain medications to control pain.
A combination of Dehydration and medications has him on a better path hopefully. Also he hopefully understands (May not Like it but understands) that Feeding and taking water through the PEG is a huge part of his survival as is managing symtonps before being out ofcontrol. Make sure you are very comfortable with any and all side effects of medications your doctors give.
He is much better and thank god at home. He is back on the good patient list. Many times he ays I do not understand however, I see the pain in his eyes and his face, I see the burned oozing tissues on his neck, I see the look of how did I get to be someone who is fed through a tube by someone.